Informationen zur ASV "Marfan


Was ist eine Marfan-Sprechstunde?

  • Mit der Zulassung der Marfan-Sprechstunde nach § 116 b SGB V ist seit 2009 auch eine umfassende interdisziplinäre Versorgung aller Patienten mit dieser seltenen Erkrankung am Klinikum Stuttgart möglich. In unserer Marfan-Ambulanz bieten wir Umfassende Erstuntersuchung und Beratung bei der Verdachtsdiagnose Marfan-Syndrom oder...

Was verursacht das Marfan-Syndrom?

  • Das Marfan-Syndrom verursacht in erster Linie Krankheitssymptome an Augen, Muskeln, Knochen, Herz-Kreislauf-System und Lunge. Menschen mit dem Marfan-Syndrom sind oft sehr groß und schlank, insbesondere die Arme und Beine sind lang. Lange und schlanke Finger (Arachnodaktylie) sind sehr häufig zu beobachten.

Was ist das Marfan-Zentrum?

  • Am Marfan-Zentrum beteiligen sich insgesamt zwölf Disziplinen, darunter die Experten aus der Kardiologie und Kinderradiologie, der Augenheilkunde und der Gefäßchirurgie. Die chirurgische Versorgung von Aortenaneurysmen und Dissektionen der Hauptschlagader ist dabei ein Schwerpunkt der Klinik für Herzchirurgie.

Wie viele Menschen haben Marfan-Syndrom?

  • Das trifft auf etwa 25 bis 30 Prozent der an Marfan-Syndrom erkrankten Patienten zu. Insgesamt sind in der Bevölkerung eine bis fünf von 10.000 Personen vom Marfan-Syndrom betroffen. Dabei gibt es keinen Unterschied zwischen den Geschlechtern.
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PDF) Marfan syndrome: Current perspectives

PDF) Marfan syndrome: Current perspectives


PDF) [Marfan syndrome]

PDF) [Marfan syndrome]


PDF) Marfan syndrome Part 1: Pathophysiology and diagnosis

PDF) Marfan syndrome Part 1: Pathophysiology and diagnosis


PDF) Ocular features of Marfan syndrome: Diagnosis and management

PDF) Ocular features of Marfan syndrome: Diagnosis and management


PDF) Marfan syndrome: A case report with review of literature

PDF) Marfan syndrome: A case report with review of literature


PDF) Overview of Marfan Syndrome: knowns and unknowns

PDF) Overview of Marfan Syndrome: knowns and unknowns


PDF) Skeletal manifestations of Marfan syndrome

PDF) Skeletal manifestations of Marfan syndrome


PDF) The role of the multidisciplinary health care team in the

PDF) The role of the multidisciplinary health care team in the


Marfan Syndrome - Pediatrics - MSD Manual Professional Edition

Marfan Syndrome - Pediatrics - MSD Manual Professional Edition


Marfan Syndrome

Marfan Syndrome


Neonatal Marfan Syndrome: A Rare  Severe  and Life-Threatening

Neonatal Marfan Syndrome: A Rare Severe and Life-Threatening


Optimising Aortic Endovascular Repair in Patients with Marfan

Optimising Aortic Endovascular Repair in Patients with Marfan


Marfan Syndrome - Pediatrics - MSD Manual Professional Edition

Marfan Syndrome - Pediatrics - MSD Manual Professional Edition


Seltene Erkrankungen: Neue Kurzinformation zum Marfan-Syndrom

Seltene Erkrankungen: Neue Kurzinformation zum Marfan-Syndrom


Marfan's syndrome - The Lancet

Marfan's syndrome - The Lancet


Marfan syndrome: clinical diagnosis and management

Marfan syndrome: clinical diagnosis and management


Marfan-Syndrom – was ist das? — Patienten-Informationde

Marfan-Syndrom – was ist das? — Patienten-Informationde


Diagnostics

Diagnostics


Survival  causes of death  and cardiovascular events in patients

Survival causes of death and cardiovascular events in patients


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218 Slide Skelett Knochen Genetik Marfan-Syndrom PowerPoint


Ciprofloxacin accelerates aortic enlargement and promotes

Ciprofloxacin accelerates aortic enlargement and promotes


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Marfan syndrome: A therapeutic challenge for long-term care


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PDF) Clinical Features Differ Substantially Between Caucasian and


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Family-based whole-exome sequencing identifies novel loss-of


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Marfan Syndrome: Causes Signs Diagnosis \u0026 Treatments


Marfan syndrome - Wikipedia

Marfan syndrome - Wikipedia


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Full text] The role of the multidisciplinary health care team in


Marfan Syndrome and Related Disorders

Marfan Syndrome and Related Disorders


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Presentation surgical intervention and long-term survival in


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Detection of ten novel FBN1 mutations in Chinese patients with


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Profound pectus excavatum in Marfan's syndrome - The Lancet


Diseases

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The Marfan aortic root: time to refine surgical guidelines

The Marfan aortic root: time to refine surgical guidelines


Herz-Kreislauf (Springer-Lehrbuch) - PDF Free Download

Herz-Kreislauf (Springer-Lehrbuch) - PDF Free Download


Irbesartan in Marfan syndrome (AIMS): a double-blind  placebo

Irbesartan in Marfan syndrome (AIMS): a double-blind placebo


Study of phenotype evolution during childhood in Marfan syndrome

Study of phenotype evolution during childhood in Marfan syndrome


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Marfan's syndrome: an overview


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Marfan-Syndrom


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Surgical Treatment of Ascending Aortic Complications in Marfan


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Marfan Syndrome Forum Page - Home


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Marfan Syndrome and Quality of Life in the GenTAC Registry


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Marfan syndrome revisited: From genetics to clinical practice


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Full text] The role of the multidisciplinary health care team in


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Primary cardiac impairment in patients with Marfan syndrome


Bestimmung der Pulswellengeschwindigkeit der Aorta mithilfe der

Bestimmung der Pulswellengeschwindigkeit der Aorta mithilfe der


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Marfan Syndrome - an overview


Molecular pathogenesis of Marfan syndrome - International Journal

Molecular pathogenesis of Marfan syndrome - International Journal


Full text] The role of the multidisciplinary health care team in

Full text] The role of the multidisciplinary health care team in


Marfan syndrome revisited: From genetics to clinical practice

Marfan syndrome revisited: From genetics to clinical practice


Marfan-Syndrom - - Buch kaufen

Marfan-Syndrom - - Buch kaufen


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Marfan syndrome: biological basis and genetics


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The “thumb and wrist sign” in Marfan syndrome


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Marfan syndrome in childhood: parents' perspectives of the impact


Marfan Syndrome Forum Page - Home

Marfan Syndrome Forum Page - Home


Large Family With Marfan Syndrome Demonstrating the Pathogenicity

Large Family With Marfan Syndrome Demonstrating the Pathogenicity


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Management of Marfan syndrome

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